Not much happened at this appointment; it was just a quick in-and-out to meet with Dr. Piper to see if any medications need to be adjusted, that the splint still fits, and that the exercises and healing are going well.
We have agreed that I need nerve block injections and have scheduled those for next week preceding my Chiro to try to kick some of my neck pain and headaches. They'll be injected into my neck and will numb the areas where I have pain in hopes of bringing the pain levels down once the anesthesia wears off. I think mine will be in the occipital nerve, but will probably have multiple done.
I'll also have my splint polished as it's a little bit sharp in a few places and has been irritating my tongue. I did want them to crimp/reposition one of my hooks on my braces because it was causing a lot of pain, but since I've started using the Orajel Antiseptic Rinse mouthwash, my mouth feels so much better. I'm using less wax and feeling a lot less pain inside my mouth.
I have been reading a lot about Magnesium supplements helping with muscle soreness and got the okay to start taking it; Dr. Piper also added Calcium and Vitamin D to my list of dailies.
Here's where I'm at as far as medications, vitamins, pain levels, and activity:
Klonopin 0.5mg 4x daily
Trazodone 1 - 1.5 tabs 1x PM
Relafen as needed for anti-inflammatory
Tylenol as needed for pain - not taken with Relafen, and not taken on consecutive days.
Glucosamine & Chondroiton
This one, to the left is the most disgusting. Buy it in powder form if possible!
I have to crush the pills and mix them and it tastes horrible.
Vitamin E, C
Calcium & Vitamin D
Magnesium
Each vitamin has a different dosage/amount of units I'm supposed to satisfy daily. It's a mess trying to remember it all, so I'm just going to spare myself the numbers for now.
Chiropractic treatments 1x week
Gym: I have been trying to go every day and target a different muscle group, but only choosing exercises that protect my neck from any strain. I haven't been able to do cardio or any HIIT as it's just too difficult to breathe out of my mouth.
Pain levels
Headaches are daily, mostly in my temples and between my eyes. They range from a pain level of 4-9, and I can't wait to get the nerve blocks.
I have slight muscle soreness and occasional spasms in my jaws, but pain levels here can be 2-4.
My teeth have become very sensitive from clenching and lifting out of the splint to talk, ranging from pain levels of 5-10, depending on when I retrain to talk with my teeth together, and play around with the Trazodone dosages and remember to relax my jaws.
My neck is what has been consistently bothering me still, as you've probably read over and over, but Chiropractic and getting into the gym to regain strength and correct my posture should help; it's just a matter of time.
When I am out of the splint, I can open my mouth wide, and have a good range of motion without pain, something that I haven't been able to say for myself for years.
I almost forgot - tomorrow, my breaks out of the splint increase to 45 minutes!
Here's my journey from injury to treatments to cure, and I am now in the healing process following a TMJ arthroplasty. I will be posting more as time permits and hope to reach others who are experiencing the same symptoms and pains that I have had and are healing from. My backstory: I fell on my face at a very young age, stunting the growth plate of the right side of my jaw. The tissue died, and growth did not continue. Both discs slipped out of place and deteriorated.
Wednesday, January 14, 2015
Saturday, January 10, 2015
Upcoming!
I have a somewhat big week coming up, as compared to the last month and a half of my life (well, minus surgery)... And just felt like writing a bit about that and what's next. I see this page as my outlet to document, share, connect, and to make myself happy, so if it starts to not make sense to you, keep in mind that it does to me.
When I moved down to St. Pete for my surgery, I had a job lined up. My offer was recently revoked because of the way I talk with the splint in, even though my employer was aware of this beforehand. Feeling discriminated against and hurt, I applied, called, interviewed, and was shot down like crazy but finally have been offered a very good position at a facility I love. Monday starts my circuit of pre-employment procedures, and will determine if I am fit for the role, so fingers crossed! I am staying realistic, but hopeful about it all.
Next, I have my six-week check up with Dr. Piper on Tuesday, where he'll see me for just a short period of time, see how I'm doing after the surgery, and answer any questions. It's not until three months that he orders a new CT and the works.
I've been spending a lot of time on the beach, and it seems to be the best cure for anything - bad day, too much on your mind, boredom, loud neighbors, anything. I'm lucky to be so close to some of the most beautiful beaches here on the Gulf!
My neck is still KILLING me and Dr. Hobbs says that skeletally, I look great, it's just muscular work now that needs to be done. He has advised me to correct my posture and work on strengthening the muscles that are causing problems. When he first saw me, he would touch a muscle in my neck and the surrounding areas would jump and spasm, but he says that that has subsided and everything "looks" great - but it just doesn't feel great yet.
Two days ago, I got back into the gym for the first time in almost four months, which used to be a religious routine for me and is something that I've really missed. It's been really difficult, not being able to breathe out of my mouth much at all, and adjusting to having lost all of my strength and about 20 pounds of weight. My starting weight was about 136-138 and I am now 113. I'm trying to pack in some protein and build muscle to get back to a healthier weight. I'm not sure if gaining or losing is more difficult, as I can now say I've experienced both.
I went roller skating last night and was terrified I'd fall on my face! No injuries occurred, just needed a firm hand to hold the entire time, and was a wall-hugger. It was actually a blast, and was my first time ever roller skating. I tried not to envy/secretly hate all of the 5-10 year olds that were rocking it.
I've applied to be approved to volunteer at a dog shelter to help fill more of my time since I'm taking this semester off from school. I'd really rather be taking a few classes now, but can see that it was a good choice to hold off until the summer, so hopefully I'll be playing with puppies soon and trying not to kidnap as many as I can carry out on the first day...
I'm currently at home with my own puppies and couldn't be happier... Nothing is better than the love of a dog.
When I moved down to St. Pete for my surgery, I had a job lined up. My offer was recently revoked because of the way I talk with the splint in, even though my employer was aware of this beforehand. Feeling discriminated against and hurt, I applied, called, interviewed, and was shot down like crazy but finally have been offered a very good position at a facility I love. Monday starts my circuit of pre-employment procedures, and will determine if I am fit for the role, so fingers crossed! I am staying realistic, but hopeful about it all.
Next, I have my six-week check up with Dr. Piper on Tuesday, where he'll see me for just a short period of time, see how I'm doing after the surgery, and answer any questions. It's not until three months that he orders a new CT and the works.
I've been spending a lot of time on the beach, and it seems to be the best cure for anything - bad day, too much on your mind, boredom, loud neighbors, anything. I'm lucky to be so close to some of the most beautiful beaches here on the Gulf!
My neck is still KILLING me and Dr. Hobbs says that skeletally, I look great, it's just muscular work now that needs to be done. He has advised me to correct my posture and work on strengthening the muscles that are causing problems. When he first saw me, he would touch a muscle in my neck and the surrounding areas would jump and spasm, but he says that that has subsided and everything "looks" great - but it just doesn't feel great yet.
Two days ago, I got back into the gym for the first time in almost four months, which used to be a religious routine for me and is something that I've really missed. It's been really difficult, not being able to breathe out of my mouth much at all, and adjusting to having lost all of my strength and about 20 pounds of weight. My starting weight was about 136-138 and I am now 113. I'm trying to pack in some protein and build muscle to get back to a healthier weight. I'm not sure if gaining or losing is more difficult, as I can now say I've experienced both.
I went roller skating last night and was terrified I'd fall on my face! No injuries occurred, just needed a firm hand to hold the entire time, and was a wall-hugger. It was actually a blast, and was my first time ever roller skating. I tried not to envy/secretly hate all of the 5-10 year olds that were rocking it.
I've applied to be approved to volunteer at a dog shelter to help fill more of my time since I'm taking this semester off from school. I'd really rather be taking a few classes now, but can see that it was a good choice to hold off until the summer, so hopefully I'll be playing with puppies soon and trying not to kidnap as many as I can carry out on the first day...
I'm currently at home with my own puppies and couldn't be happier... Nothing is better than the love of a dog.
That's all I can think to write at the moment, just taking things as they come still, and trying to make the best of it all.
Tuesday, January 6, 2015
One Month Post-Op
Every day that I wake up and am closer to my three month "anniversary" is a beautiful blessing. I can't wait to spend more time out of the splint and fully feel the benefits of this procedure. I can feel them every day, progressing and making me a stronger, happier person. It is so great to be able to converse with others, shout and scream, and sing to my heart's content. I haven't done that in... I can't even remember how long.
Recovery has not been easy pain-wise, but the pain changes the further down the road I come; keeping me on my toes, and teaching me what I need to fix to be 100%.
The inside of my mouth is a wreck from the braces, bands, and brackets, and the Therabite is now starting to irritate me as a little well. I feel like I have permanent lines tattooed into my cheeks from the bands, and have developed cuts on my lips and sores/cuts inside my mouth. They're my "battle scars."
I'm going to start doing more and trying new things to treat and prevent all of this as it's absolutely miserable at times! Honestly, the most comfortable thing to do is puff my cheeks out like a child having a tantrum; not the most becoming, though.
I was able to wear ear buds for the first time a few days ago. It wasn't too bad, but my ears were sore afterwards. The scars are more prominent than I thought they'd be, but I'm told repeatedly they are not noticeable (as people always say). I also feel like my ears are still swollen and the cartilage feels a bit harder than it used to.
The incision on my abdomen is healing well, but is still pretty bumpy and I'm hoping that goes away or I can find a way to help it along. It isn't noticeable, but I of course don't like it. For someone who has never had an incision or stitches, I'm pretty fascinated by how odd they look.
I ate my first meal out in public yesterday. I just brought my bag of essentials along, ordered, and once my food was ready, went to the bathroom and took the splint out, putting it back in after 30 minutes. It was great! I had rice, beans and guac at a great Mexican place.
I'm exploring and trying more with meals; beans and rice, shredded chicken, BROWNIES, bread soaked in soup so that it's easily swallowed (PANERA - FINALLY), and I'm going to try a taco salad (sans-taco shells) this week. I'm having a hard time getting enough protein or hardly any meat, so now's the time to get creative.
I've been having Chiropractic treatment once a week, but still feel like a mess. If it isn't my upper back, it's my lower and vice versa; My C-spine is still a wreck but ice helps more than I give it credit for. I woke up Sunday with intense pain in my sternocleidomastoid muscle on both sides and was terrified they'd start spasming. Ice helped with that as well. My traps are still a constant problem as they're inflamed and have very obvious trigger points, but ultrasound therapy and everything that Dr. Hobbs has been doing is helping a lot. I've been advised to stop stretching my neck so much as I'm aggravating the capsules and to self-massage and use ice, which, I give the Doc credit for - really works, as simple as it is.
I have a quick check-up in the clinic in one week, and have a list of questions/concerns prepared that I'd like to ask Dr. Piper:
I'm still maintaining my last instructions to double my dosage of Trazodone at night to keep my muscles from spasming, but it's still so hard to get out of bed in the morning. If I don't lay down soon after taking it, I feel like I'll fall, right where I am. I've heard a lot about Magnesium from different forums and want to see if maybe it could be a good alternative for me. Granted, the Trazodone is helping a lot, I'd just like to get away from the side effects.
As for the pain in my jaws, I have none! I wouldn't say none as in never, at any point, under any circumstance - yawning, talking too much, bumping my jaws, and doing the exercises cause small bouts of pain, but nothing like what I was going through before. Side-to-side movements while out of the splint seem to cause the most pain (sharp and acute, not lasting very long), for whatever reason.
I am so happy with my progress and decreased levels of pain. My ice packs and heating pads, strict exercise regime, and timely medication routine have been a huge help, as well as Chiropractic and constant advice from the loving Clinic staff.
I'm starting to become a "picture" girl, so surround yourself with beautiful things, keep looking forward, and see the beauty in your pain; that you are alive enough to feel it, and strong enough to survive it. I took comfort in that before I could find the help I needed; that even though I wanted to curl into a ball and never face the world, I was able to get up and do just that, day after day, despite the pain.
Recovery has not been easy pain-wise, but the pain changes the further down the road I come; keeping me on my toes, and teaching me what I need to fix to be 100%.
The inside of my mouth is a wreck from the braces, bands, and brackets, and the Therabite is now starting to irritate me as a little well. I feel like I have permanent lines tattooed into my cheeks from the bands, and have developed cuts on my lips and sores/cuts inside my mouth. They're my "battle scars."
I'm going to start doing more and trying new things to treat and prevent all of this as it's absolutely miserable at times! Honestly, the most comfortable thing to do is puff my cheeks out like a child having a tantrum; not the most becoming, though.
I was able to wear ear buds for the first time a few days ago. It wasn't too bad, but my ears were sore afterwards. The scars are more prominent than I thought they'd be, but I'm told repeatedly they are not noticeable (as people always say). I also feel like my ears are still swollen and the cartilage feels a bit harder than it used to.
Looking at this photo now, I can see that
the incision isn't all that noticeable.
The other side looks identical.
The incision on my abdomen is healing well, but is still pretty bumpy and I'm hoping that goes away or I can find a way to help it along. It isn't noticeable, but I of course don't like it. For someone who has never had an incision or stitches, I'm pretty fascinated by how odd they look.
I ate my first meal out in public yesterday. I just brought my bag of essentials along, ordered, and once my food was ready, went to the bathroom and took the splint out, putting it back in after 30 minutes. It was great! I had rice, beans and guac at a great Mexican place.
I'm exploring and trying more with meals; beans and rice, shredded chicken, BROWNIES, bread soaked in soup so that it's easily swallowed (PANERA - FINALLY), and I'm going to try a taco salad (sans-taco shells) this week. I'm having a hard time getting enough protein or hardly any meat, so now's the time to get creative.
I've just started today with this supplement, which is delicious and tastes like iced coffee. I have clearance to get back into the gym and hit some weights (light weights, high reps... better than nothing) and can't wait!
I've been having Chiropractic treatment once a week, but still feel like a mess. If it isn't my upper back, it's my lower and vice versa; My C-spine is still a wreck but ice helps more than I give it credit for. I woke up Sunday with intense pain in my sternocleidomastoid muscle on both sides and was terrified they'd start spasming. Ice helped with that as well. My traps are still a constant problem as they're inflamed and have very obvious trigger points, but ultrasound therapy and everything that Dr. Hobbs has been doing is helping a lot. I've been advised to stop stretching my neck so much as I'm aggravating the capsules and to self-massage and use ice, which, I give the Doc credit for - really works, as simple as it is.
I have a quick check-up in the clinic in one week, and have a list of questions/concerns prepared that I'd like to ask Dr. Piper:
I have accidentally bumped myself in the jaw enough to raise
concern a few times; Could it have done any damage?
Are there any parts of my braces/brackets that can be
removed to avoid irritation?
Doubling the dosage of Trazodone has helped a lot with the
sensitivity in my scalp and headaches. Are there any repercussions of increasing the dose?
I am still getting headaches almost daily though, is there
anything I can take or do to prevent/treat them? They are in my temples and
between the eyes.
The therabite pinches my cheeks very hard when I use it after moving up to Peg 4.
I have a hook (on the braces) that is bent forward and
causes the most pain and irritation inside my mouth. The hook in the front center causes a lot of irritation and
pain as well.
I have heard of taking Magnesium to help with
Bruxism and muscle pain. What do you think of this and would it be right for me rather than
Trazodone?
I'm still maintaining my last instructions to double my dosage of Trazodone at night to keep my muscles from spasming, but it's still so hard to get out of bed in the morning. If I don't lay down soon after taking it, I feel like I'll fall, right where I am. I've heard a lot about Magnesium from different forums and want to see if maybe it could be a good alternative for me. Granted, the Trazodone is helping a lot, I'd just like to get away from the side effects.
Truer words have never been spoken. Cheeeeese fries.
As for the pain in my jaws, I have none! I wouldn't say none as in never, at any point, under any circumstance - yawning, talking too much, bumping my jaws, and doing the exercises cause small bouts of pain, but nothing like what I was going through before. Side-to-side movements while out of the splint seem to cause the most pain (sharp and acute, not lasting very long), for whatever reason.
I am so happy with my progress and decreased levels of pain. My ice packs and heating pads, strict exercise regime, and timely medication routine have been a huge help, as well as Chiropractic and constant advice from the loving Clinic staff.
I'm starting to become a "picture" girl, so surround yourself with beautiful things, keep looking forward, and see the beauty in your pain; that you are alive enough to feel it, and strong enough to survive it. I took comfort in that before I could find the help I needed; that even though I wanted to curl into a ball and never face the world, I was able to get up and do just that, day after day, despite the pain.
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